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Care for children with epidermolysis bullosa: Palliative ways to solve the problem

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Issue: 
8
Year: 
2013

N.V. Benova, Prof. K.I. Grigoryev, K.V. Kovalenok N.I. Pirogov Russian National Research Medical University

The paper analyzes the distribution and course of lifethreatening childhood diseases in case of epidermolysis bullosa. It presents the principles of care for these children, by applying the currently available care products and discusses further prospects for introducing palliative pediatrics in Russian practice.

Keywords: 
palliative care for children
nursing care
lifethreatening diseases
epidermolysis bullosa



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